The Appendix Cancer PMP Research Foundation Natural History Study/Patient Registry

🩺 Protocol Summary

ACPMP's first-ever patient-powered global patient registry/natural history study collects patient and caregiver information and data to fuel clinical trials and drive breakthroughs for appendix cancer and PMP. We've invested the time and resources to make our Registry regulatory grade. Our Registry operates under active, ongoing Institutional Review Board (IRB) oversight by independent ethicists. It is powered by NORD's IAMRARE®, an industry gold standard platform built to be consistent with FDA's best thinking on natural history studies.

Primary Research Facility: ACPMP (Springfield, Pennsylvania)

Review these 3 basic logistical and protocol criteria extracted from the public NIH record. (This is a preliminary logistical checklist, not an official clinical eligibility determination).

Diagnosed with, undergoing evaluation for, or seeking treatment related to Appendix Cancer?

🔍 Study Population / Focus Area (Source: Protocol Primary Condition)

Meet age requirements outlined in full study protocol?

🔍 Full Protocol Eligibility Criteria

Able to attend required clinic visits at ACPMP (Springfield, Pennsylvania)?

🔍 Logistical Requirement: Site at ACPMP

📍 Primary Site Map

Site: ACPMP — Springfield, Pennsylvania

💰 Clinical Trial Costs & Insurance Coverage

Coverage for clinical trial participation varies depending on your health insurance policy, state legislation, and whether specific procedures are investigational research or routine medical care. Under federal law (Affordable Care Act § 2709), health insurers generally cannot drop coverage or refuse to pay for routine patient care costs incurred in approved clinical trials.

💡 Always ask the study coordinator for the trial's official Informed Consent Form, which outlines all sponsor-funded research items versus procedures billed to your insurance.