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🏛️ Verified NIH Protocol • Sourced via U.S. National Library of Medicine (Last Synced: 2025-04-03)

A Multicenter Multinational Observational Study of Children With Hypochondroplasia

🟢 Recruiting Not Applicable 📊 Observational Clinical Research Sponsor: BioMarin Pharmaceutical

🩺 Protocol Summary

This study will assess growth over time and the clinical course of HCH in children by collecting growth measurements and other variables of interest.

Primary Research Facility: Phoenix Children's Hospital (Phoenix, Arizona)

📋 Basic Study Criteria & Logistics Checklist

0 of 3 Checked

Review these 3 basic logistical and protocol criteria extracted from the public NIH record. (This is a preliminary logistical checklist, not an official clinical eligibility determination).

📍 Primary Site Map

Site: Phoenix Children's Hospital — Phoenix, Arizona

📍 All Participating Trial Locations (43 Sites)

Multi-Center Trial

This protocol is enrolling participants across multiple clinical centers:

1. Phoenix Children's Hospital — Phoenix, Arizona
2. Cedars-Sinai Medical Center — Los Angeles, California
3. UCSF Benioff Children's Hospital — Oakland, California
4. Nemours Alfred I. Dupont Hospital for Children — Wilmington, Delaware
5. Children's National Health System — Washington D.C., District of Columbia
6. Ann & Robert H. Lurie Children's Hospital of Chicago — Chicago, Illinois
7. The Johns Hopkins University School of Medicine — Baltimore, Maryland
8. Boston Children's Hospital — Boston, Massachusetts
9. University of Minnesota Masonic Children's Hospital — Minneapolis, Minnesota
10. University of Missouri — Columbia, Missouri
11. Washington University School of Medicine in St. Louis — St Louis, Missouri
12. Mount Sinai Kravis Children's Hospital — New York, New York
13. Akron Children's Hospital — Akron, Ohio
14. Nationwide Children's Hospital — Columbus, Ohio
15. Cook Children's Endocrinology — Fort Worth, Texas
16. Medical College of Wisconsin, Children's Hospital — Milwaukee, Wisconsin
17. Hospital de Pediatria SAMIC Prof. Dr. Juan P Garrahan — United States
18. Royal Children's Hospital Melbourne — Parkville, Victoria
19. Hospital de Clinicas de Porto Algre — Porto Alegre, Rio Grande Do Sol
20. Hospital das Clinicas da Faculdade de Medicina de Ribeirao Preto — Ribeirão Preto, São Paulo
21. Stollery Children's Hospital — Edmonton, Alberta
22. SickKids - The Hospital for Sick Children — Toronto, Ontario
23. Centre Hospitalier Universitaire Sainte-Justine — Montreal, Quebec
24. Hospices Civils de Lyon - Hôpital Femme Mère Enfant — United States
25. Hopital de la Timone — United States

📄 Print Doctor Discussion Sheet

Preview and print a 1-page summary with 5 tailored questions for your physician.

💰 Clinical Trial Costs & Insurance Coverage

Coverage for clinical trial participation varies depending on your health insurance policy, state legislation, and whether specific procedures are investigational research or routine medical care. Under federal law (Affordable Care Act § 2709), health insurers generally cannot drop coverage or refuse to pay for routine patient care costs incurred in approved clinical trials.

💡 Always ask the study coordinator for the trial's official Informed Consent Form, which outlines all sponsor-funded research items versus procedures billed to your insurance.

🏛️ Official Government Provenance

NIH ClinicalTrials.gov Protocol Record

NCT Identifier: NCT06212947 • Last Synced: 2025-04-03
View on ClinicalTrials.gov ↗
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