Adrenoleukodystrophy National Registry Study

🩺 Protocol Summary

The aim of this registry to understand the natural history and disease progression in ALD and potentially develop bio-markers using the biospecimens collected using this registry.

Primary Research Facility: Masonic Cancer Center at University of Minnesota (Minneapolis, Minnesota)

Review these 3 basic logistical and protocol criteria extracted from the public NIH record. (This is a preliminary logistical checklist, not an official clinical eligibility determination).

Diagnosed with, undergoing evaluation for, or seeking treatment related to ALD (Adrenoleukodystrophy)?

🔍 Study Population / Focus Area (Source: Protocol Primary Condition)

Meet age requirements outlined in full study protocol?

🔍 Full Protocol Eligibility Criteria

Able to attend required clinic visits at Masonic Cancer Center at University of Minnesota (Minneapolis, Minnesota)?

🔍 Logistical Requirement: Site at Masonic Cancer Center at University of Minnesota

📍 Primary Site Map

Site: Masonic Cancer Center at University of Minnesota — Minneapolis, Minnesota

💰 Clinical Trial Costs & Insurance Coverage

Coverage for clinical trial participation varies depending on your health insurance policy, state legislation, and whether specific procedures are investigational research or routine medical care. Under federal law (Affordable Care Act § 2709), health insurers generally cannot drop coverage or refuse to pay for routine patient care costs incurred in approved clinical trials.

💡 Always ask the study coordinator for the trial's official Informed Consent Form, which outlines all sponsor-funded research items versus procedures billed to your insurance.